Browsers that can not handle javascript will not be able to access some features of this site.
Skip Navigation
Michigan Department of Community HealthMichigan.gov
Michigan.gov Home MDCH Home | Online Services | Sitemap | Contact MDCH
Printer Friendly Version Printer Friendly   Text Only Version Text Version  Share this page.
Birth Defects and Genetic Conditions:


The Department of Community Health, Genetics and Birth Defects Program is pleased to present this virtual version of the Birth Defects Toolkit.  The following are links to resources for families and professionals that may be helpful in caring for children with birth defects and genetic conditions.   A limited number of toolkits with resource materials in hard copy, filed in a handy organizer, are available at no charge to Michigan professionals who work with families of children with special needs. Click here for a toolkit order form.  Forms for ordering multiple copies of selected pamphlets are also included, and electronic updates are provided periodically. Please call 1-866-852-1247 or email genetics@michigan.gov for more information or to request a toolkit.
 

 

  Health and Support Services
for Families

 1.

A First Step to your Baby's Health Newborn Screening  pamphlet (also in Spanish , Arabic )

18. 

MiChild  (also in Arabic and Spanish ) pamphlet

 2.

Child Development Wheel(also in Spanish, Arabic)

19. 

Michigan's Community Hearing Screening Program pamphlet  (also in  Spanish Arabic )

 3.

Children with Special Needs Fund (website)

20. 

Resources for Families of Infants and Toddlers with Special Needs pamphlet

4.

Children's Special Health Care Services (website) Brochure (also in  SpanishArabic

21. 

Special Care for Special Kids: A Guide for Michigan Families guidebook

5.

Concerned About the Development or Health of Your Child?  Early On ® pamphlet (also in  Spanish,  Arabic)

22.

Watch Me Grow Calendar (also in Spanish)  (website)

6.

CSHCS Emergency Preparedness Guide (website)

23.

Welcome to the Michigan WIC Program (website)

7.

CSHCS Support Parent Training Course

24.

Michigan Alliance for Families brochure

8.

Family Guidance: Transition Planning for Youth pamphlet

25.

Share - March of Dimes brochure

9.

Family Guide to Michigan's Children's Special Health Care Services Program

26.

Questions and Answers: Dept. of Human Services  Pamphlet

10.

Family Support Network pamphlet

27.

Healthy Kids
pamphlet

11.

Family-to-Family Health Information and Education Center

28.

Center for Education Networking     (website)

12.

Genetics and Young Children with Hearing Loss   pamphlet

29.

CSHCS Insurance Premium Payment Benefit   Pamphlet

 13.

  Guide-By-Your-Side  pamphlet

 30

Family History and Your Health Fact Card   

 14.

  Hands and Voices   website

 31.

Michigan Diaper and Incontinence Supplies Program

 15.

Helping Young People Succeed in School  Project Find pamphlet (also in   Spanish Arabic )  

 32.

A Family Guide to Respite for Children in Michigan

 16.

Michigan Genetic Counseling Services pamphlet

 33.

Special Olympics Brochure   

 17.

Michigan Genetic Support Group Directory

Resource and Referral Information
for Providers

1.

A Guide to Genetics Referral pamphlet

15.

Order forms:   MiGenetics Connection,  
Watch Me Grow,
Early on and Project Find
Family to Family & Education Center Materials
Early Hearing, Detection and Intervention Program 

2.

Babies with Birth Defects: A Referral Guide for Michigan Hospitals booklet with sample form

16.

Top 20 Resource and Referral pocket card

3.

Children's Special Health Care Services local office contacts (also online at www.michigan.gov/mdch, then search "CSHCS Provider Information")

17.

Translation and Interpreter Services listing

4.

CSHCS Medical Eligibility Report Form

18.

Web-based Training online at  training.mihealth.org  
Birth Defects Registry Reporting;
Newborn Screening;  What is Children's Special Health Care Services?

5.

Community Mental Health Service Programs

19.

Early On®  Guide for Physicians

6.

Early On® Coordinators listing by county

20.

Medical Home Resources

7.

Early On®/Project Find (website)

21.

Resources on Grieving

8.

Early On®/ Project Find
referral fax form

22.

What is a Genetic Counselor? NEW!
Online resource only!

9.

Hospice Care for Children with Life-Limiting Conditions fact sheet and Michigan listing

 

 

10.

Local Health Department Directory

 

 

11.

MCIR pamphlet

 

 

12.

Medical Home for Children with Special Needs fact sheet

 

 

13.

MI Genetics Connection Resource Center

 

 

14.

Michigan Directory of Service Providers for Infants, Toddlers & Students with Disabilities

 

 

  (back to top)

Condition Fact Sheets

Newborn Screening

 

Biotinidase Deficiency

 

Homocystinuria

 

Citrullinemia and Argininosuccinic Acidemia  (ASA)

 

Maple Syrup Urine Disease  (MSUD)

 

Congenital Adrenal Hyperplasia  (CAH)

 

Medium-Chain Acyl-Coenzyme A Dehydrogenase Deficiency  (MCAD Deficiency)

 

Congenital Hypothyroidism  (CH)

 

Phenylketonuria  (PKU)

 

Galactosemia

 

Sickle Cell Anemia

 

Cystic Fibrosis

Genetic Disorders

 

22q11.2 Deletion Syndrome

 

Noonan Syndrome

 

Angelman Syndrome

 

Prader-Willi Syndrome

 

Beckwith-Wiedemann Syndrome

 

Rett Syndrome

 

Down Syndrome

 

Smith-Magenis Syndrome

 

Fragile X Syndrome

 

Tuberous Sclerosis

 

Klinefelter Syndrome

 

Turner Syndrome

 

Marfan Syndrome

 

Williams Syndrome

 

Neurofibromatosis  (type 1)

  (back to top)

Fetal Alcohol Effects

Prevention Information

1.

Look and Feel Your Best with Folic Acid  (pamphlet )

2.

Preconceptional Health  (resource list)

3.

Preventing Birth Defects  (pamphlet)

4.

When Mom Drinks Baby Pays Too!  (fact sheet)

5.

Substance Abuse Access Management System, Agency Directory

6.

You Can Quit Smoking

7.

Planning to have a baby

8.

A Guide to a Healthy Home

9.

The Birds and the Bees…and Diabetes NEW!

Other

Free and Low Cost Health Care Coverage Available to Michigan Adults, Children, Pregnant Women and Families (also available in  Spanish  and  Arabic )
Respite locator

Family Guide to Respite for Children in Michigan

The Michigan Monitor Fall 2008   (Birth Defects Newsletter)
Family Support Subsidy Program  Brochure
Region 4 Genetics Collaborative (website)  
Michigan Tobacco QuitLine wallet card   (website) 
The Birds and the Bees…and Diabetes  (website)  NEW!

 Contact us: Genetics@michigan.gov

 
 
 
Michigan Business One Stop
Link to Department and Agencies Web Site Index
Link to Statewide Online Services Index
Link to Statewide Web-based Surveys
Link to RSS feeds available on this site
Related Content
 •  Promoting Cancer Genomics Best Practices through Surveillance, Education and Policy Change in the State of Michigan, 2008-2011
 •  Michigan Bio Trust for Health
 •  Newborn Screening Follow-up Family Recognition Day September 06, 2008
 •  Public Health Genomics Program
 •  Public Health Genomics Program: Publications and Presentations
 •  Genomics and Genetic Disorders Staff Directory
 •  Fact sheets for the eleven NBS disorders PDF icon
 •  Newborn Screening Program

Michigan.gov Home | MDCH Home | Contact MDCH | State Web Sites
Privacy Policy | Link Policy | Accessibility Policy | Security Policy | Michigan News | Michigan.gov Survey

Copyright © 2001-2009 State of Michigan